Mike and Cam are excited to be joined again by Marilyn Geller, CEO of the Celiac Disease Foundation. Marilyn joins us on the eve of the CDF's second Patient Education & Advocacy Summit. Learn all about this groundbreaking event and how you can be a part of it. Marilyn also shares more exciting news about other ways that the CDF is helping to advance legislation and research for celiac disease.
Mike and Cam, again joined by Mike's wife Ellen, dive into part 2 of Winter News and Notes, talking about a very promising phase three drug study. They also get to more of your incredible emails and the show ends with Mike giving Ellen a very "cheesy" challenge.
Mike's wife and the show's producer, Ellen, joins Mike and Cam to read some of the fantastic letters from our amazing listeners! Today, they discuss the shocking story about a wife and her husband's blood test mix up, plus an email looking for answers about when being on the gluten free diet isn't enough. Join us next week in Part 2 as we discuss more of your emails and share news of a very promising study.
The Celiac Project Podcast is excited to help with a big announcement! Mike and Cam are joined by Cutting Costs for Celiacs founder, Lexie Van Den Heuvel, and COO of GIG, Channon Quinn as they share that GIG will be taking Lexie's Wisconsin-based non-profit, which she began as a teenager, nationally. She and Channon explain the process of how GIG plans to support Lexie's mission to help folks with celiac who are struggling to get by on a much grander scale.
The "Big Game" is this weekend so we invited Sam and Brian to join this week's show! We get you ready by tasting a couple of ciders and beers and talk about our game day favorite foods. The discussion quickly turns to beer cheese, Welsh Rarebit, Nachos and something called Schmooey on Toast. It might sound cheesy, but is everything just better with cheese? Grab a cold one and decide for yourself as we get you ready for Sunday's "Big Game!"
The mind/gut connection is powerful and very real, especially with those who have celiac disease and other related GI conditions. Mike and Cam sit down with Dr. Alyse Bedell of the University of Chicago, who specializes in this phenomenon, to talk with us about her approach in treating patients who are seeking relief. Dr. Bedell shares her advice for our listeners who are struggling with some of these issues.
Last week, Mike and Cam had a blast reacting in real time to the survey questions from the latest edition of the Gluten Free Buyers Guide, without first knowing the results. There were some shockers! Tune in to Part 2, where these questions and results get even crazier!
The latest edition of the Gluten Free Buyers Guide published a fascinating survey of around 600 readers. Mike and Cam don't know the results, so they decide to go through the survey blindly and give their answers and prediction of how other celiacs answered. They had so much fun it became a two part show!
We celebrate our 5th year Anniversary of producing the podcast by each sharing our five takeaways over the duration of the show. We also celebrate the numerous incredible guests and thank our wonderful loyal listeners for continuing to listen, interact and support the work we do. Looking forward to a great 2021!
As we crawl to the end of 2020, we thought it would be appropriate to toast its much-anticipated end with Ghost Pepper Saison Beer made by Ghost Fish. Reflecting on the strange year that was, it's fitting that Cam shares his mom's recent experience with COVID and the puzzling test results in their home. Ending on a sweet note, we look ahead to what we believe will be a much better 2021, toasting our listeners with a tasty Carmel Cocoa Cider by Stem. Happy New Year to all!
Mike and Cam have an illuminating conversation with Dr. Ritu Verma from the University of Chicago Celiac Center. Dr. Verma shares her unique perspective on treating celiac disease not only as a doctor, but as a parent of two children with celiac disease. Dr. Verma talks about her holistic approach to treating patients because she knows firsthand that moving forward with a celiac disease diagnosis is not a one size fits all proposition. She also shares her thoughts on the U of C's recent Autoimmunity and Beyond symposium.
Mike and Cam sit down with Cinde Little, Health Educator, and passionate home cook who founded Everyday Gluten Free Gourmet. Cinde shares her personal story of how she became such a passionate advocate for supporting folks with celiac disease and helping people learn to love to cook gluten free. She also tells us some of her top cooking tips over the holidays and beyond including her "seasonal strategy" for rotating fresh ingredients when they are in season.
The life of a college athlete has may challenges. Add into that mix having celiac disease, and there can be many added speed bumps along the way. Laura Carpenter, a former college soccer player, explains what it was like to navigate the world of college athletics while being away from the safety net of her home and family for the first time. Laura also offers great tips to students and their families, athletes or not, on important factors to look for and think about when looking at schools.
Thanksgiving can present unique challenges to people with celiac disease or gluten intolerance. This year we have the added strain of dealing with COVID-19. Mike and Cam discuss what the changes will be for them this year as well as tips on how to stay safe during the holidays. They also share their insights on using the pandemic as an example for how careful we have to be in our lives avoiding gluten.
Lori Welstead, Registered Dietician and Nutritional Advisor at the University of Chicago Celiac Disease Center, joins Mike and Cam to share her own incredible story of her celiac diagnosis. Lori also talks about her approach working with newly diagnosed celiac patients. We also hear about the University of Chicago's upcoming Celiac Disease, Autoimmunity & Beyond virtual symposium that is coming up on Saturday, November 21st.
Mike and Cam are excited to be joined by Jeanne Reid and Laura Allred of the Gluten Intolerance Group (GIG). They share the big news with us that GIG is changing the Gluten Free Certification Organization (GFCO) seal, the GF in the circle that we have all come to know and trust over the years. We learn the details and thought process behind this decision and why it will benefit the celiac and gluten free community moving forward.
Mike and Cam sit down to discuss three new fascinating studies that were done in conjunction with The Celiac Disease Foundation's, iCureCeliac Patient Registry. We also talk about the early results of research just in time for Thanksgiving. This one showed that combining turkey amino acid (tryptophan) with probiotics was found to reduce gluten-triggered inflammation and improve the response to a gluten-free diet in people with celiac disease.
This week we wrap up our Fall News and Notes podcast with a couple of uplifting messages from our listeners, an update on how the Nourished Festival went including shout outs to the companies who sent us some samples to try. On that topic we discuss examples of some of the struggles that gluten free businesses are having during this time and what we can do to support the small companies and restaurants who are working so hard to support us.
Mike and Cam sit down to discuss some of the current topics in the celiac and gluten free world, and also read some letters from our amazing listeners. In part one of this special two part fall episode, we share a listener's emotional family story, talk about a promising study about how gluten being introduced to infants might impact them getting celiac disease, and the latest on the Nima sensor situation.
It has been treacherous navigating daily life during the COVID outbreak. Students with celiac returning to school have been put under extra stress, as many schools have fewer resources devoted to students with celiac or other food intolerances. Some colleges have abandoned special food programs all together. Andrea Tucker is working hard to support students and their families who are facing these obstacles. She has a Facebook group Gluten Free College 101 and is announcing a new subscription platform to provide this very important support.
Disability Rights Attorney, Mary Vargas, returns to the podcast representing her clients in two landmark cases within the celiac community. J.D., whose case against Colonial Williamsburg sent shockwaves through the celiac and gluten free community, and Hannah, who's involved in a case against the University of Maryland. Both courageous guests share their experiences about these tough situations, how and why they decided to go to court, and their long term hopes about how their cases can hopefully effect positive change moving forward.
Returning author and blogger, Debbie Simpson of Gluten Free Respect, has just released her newest book "Gluten Free: The Emotional Side of Dietary Differences." Debbie, Mike and Cam have a frank discussion about the emotions that come with having celiac disease or gluten intolerance, and some of the steps and challenges that they all experienced in order to move through their lives both pre-diagnosis and post.
Nima was recently sold to the company Medline, and not everything has gone so smoothly. Most importantly, people who rely on the Nima have found that replacement capsules are no longer available for purchase. It has been difficult finding answers from Medline, so Mike and Cam want to share the latest on the situation and offer some of their thoughts and ideas that could make things easier moving forward.
The pandemic has affected so many businesses, and for the Gluten Free Expos and Festivals more people attending these large gatherings means more success. So Jen Cafferty, the founder of everyone's favorite gluten free and allergy friendly Expo, the Nourished Festival, didn't just fold up her tent when COVID-19 struck. Instead, she got right to work creating an innovative new online platform. Learn all about the amazing work that Jen is doing to bring this exciting version of the Nourished Festival to you!
You don't need us to tell you that this has been a summer like no other,. That said, Mike and Cam each want to take some time to reflect on the top five things that have kept us in a positive head space during the pandemic. We are so honored that you choose to listen to us each and every week and bringing the podcast to you is certainly high on our list of things that are keeping us moving forward. Thanks for your support!