May is Celiac Awareness Month, so Mike and Cam kick it off once again with their annual "Celiac State of the Union" podcast. Hear Mike and Cam's personal list of 5 things that they think have improved in the arena of celiac awareness, and 5 things that they both think need some work. Most importantly, Mike and Cam hope that this year, celiac awareness month will lead to some important improvements to those of us living with celiac disease!
Mike and Cam are excited to sit down with Dr. Dale Lee, Director of the Celiac Disease Program at Seattle Children's and board member and parent, Anne Moon. Dr. Lee describes his refreshing and holistic approach to treating celiac disease at Seattle Children's. Anne shares her perspective of how involving the kids, their families and the medical staff has been a transformative experience for all. Dr. Lee is one of the forward thinking celiac physicians leading the charge in transforming the way that celiac patients are treated.
Maureen Basye, founder of the Celiac Cruise, is back to share some exciting updates and details about the Celiac Cruise in 2022. Maureen has also put together a smaller, more intimate European cruise, a truly unique adventure! Her desire is more than just a gluten free trip--her passion is to provide unique opportunities for our celiac community to connect with one another and be well informed all while having a blast!
Mike and Cam are excited to announce that they are both part of the phase 3 study of Larazotide Acetate. They share a few of the early details and their individual reasons for why they both felt it was important to take part. They also share some celiac related COVID and vaccine updates.
Mike and Cam welcome author, Michal Babay, to talk about her brand new children's book: "I'm a Gluten Sniffing Service Dog." Michal shares the fascinating and, at times harrowing, journey that led her daughter to getting their service dog, Chewy. We also learn about what inspired Michal to write the book and her hopes to educate and inspire others who are struggling with celiac and other food intolerance.
Every March folks put together a bracket for March Madness to try and pick the best college basketball team in the land. This year our friend Erin Smith, Gluten-Free Globetrotter, decided to have fun with another type of madness, the crazy terms people try and use to describe gluten free. She ran these terms into "brackets" through her Instagram page, and now Mike and Cam do their best to prognosticate what was voted the truly best "worst" term to describe gluten free. Find out if your least favorites make it to the championship!
Mike and Cam welcome returning guest, Disability Rights Attorney, Mary Vargas. Mary discusses an important and often overlooked topic; how the prison and jail systems handle inmates with celiac disease or other food intolerance/allergies. Mary is currently representing a man who, despite being diagnosed with celiac disease, was not given safe food while in jail. We go deep into this subject and talk about the need for the government to provide better support.
Mike and Cam are quizzed on all things Irish in honor of St. Patrick's Day on their first ever, "Stump Mike and Cam" podcast. In addition they try possibly the strangest spirit ever created, called Malort, and share the strange and entertaining story behind this quirky Chicago tradition that can be best described as motor oil with a twist of grapefruit. So grab a bottle of Malort, and test your Irish trivia!
Mike and Cam are excited to be joined by returning guest, Katie Jones. When we last talked to Katie (EP 71 and then EP 119) she was struggling mightily with her health. Katie has multiple autoimmune diseases including: brittle bone disease, MALS and POTS, in addition to celiac disease. Now in a much better place health wise, Katie is following her wanderlust, purchasing a van and setting out on a new life adventure with her gluten detection dog, Piper. She shares some of her plans and tips for those with celiac disease who want to go on similar adventures.
Mike and Cam are excited to be joined again by Marilyn Geller, CEO of the Celiac Disease Foundation. Marilyn joins us on the eve of the CDF's second Patient Education & Advocacy Summit. Learn all about this groundbreaking event and how you can be a part of it. Marilyn also shares more exciting news about other ways that the CDF is helping to advance legislation and research for celiac disease.
Mike and Cam, again joined by Mike's wife Ellen, dive into part 2 of Winter News and Notes, talking about a very promising phase three drug study. They also get to more of your incredible emails and the show ends with Mike giving Ellen a very "cheesy" challenge.
Mike's wife and the show's producer, Ellen, joins Mike and Cam to read some of the fantastic letters from our amazing listeners! Today, they discuss the shocking story about a wife and her husband's blood test mix up, plus an email looking for answers about when being on the gluten free diet isn't enough. Join us next week in Part 2 as we discuss more of your emails and share news of a very promising study.
The Celiac Project Podcast is excited to help with a big announcement! Mike and Cam are joined by Cutting Costs for Celiacs founder, Lexie Van Den Heuvel, and COO of GIG, Channon Quinn as they share that GIG will be taking Lexie's Wisconsin-based non-profit, which she began as a teenager, nationally. She and Channon explain the process of how GIG plans to support Lexie's mission to help folks with celiac who are struggling to get by on a much grander scale.
The "Big Game" is this weekend so we invited Sam and Brian to join this week's show! We get you ready by tasting a couple of ciders and beers and talk about our game day favorite foods. The discussion quickly turns to beer cheese, Welsh Rarebit, Nachos and something called Schmooey on Toast. It might sound cheesy, but is everything just better with cheese? Grab a cold one and decide for yourself as we get you ready for Sunday's "Big Game!"
The mind/gut connection is powerful and very real, especially with those who have celiac disease and other related GI conditions. Mike and Cam sit down with Dr. Alyse Bedell of the University of Chicago, who specializes in this phenomenon, to talk with us about her approach in treating patients who are seeking relief. Dr. Bedell shares her advice for our listeners who are struggling with some of these issues.
Last week, Mike and Cam had a blast reacting in real time to the survey questions from the latest edition of the Gluten Free Buyers Guide, without first knowing the results. There were some shockers! Tune in to Part 2, where these questions and results get even crazier!
The latest edition of the Gluten Free Buyers Guide published a fascinating survey of around 600 readers. Mike and Cam don't know the results, so they decide to go through the survey blindly and give their answers and prediction of how other celiacs answered. They had so much fun it became a two part show!
We celebrate our 5th year Anniversary of producing the podcast by each sharing our five takeaways over the duration of the show. We also celebrate the numerous incredible guests and thank our wonderful loyal listeners for continuing to listen, interact and support the work we do. Looking forward to a great 2021!
As we crawl to the end of 2020, we thought it would be appropriate to toast its much-anticipated end with Ghost Pepper Saison Beer made by Ghost Fish. Reflecting on the strange year that was, it's fitting that Cam shares his mom's recent experience with COVID and the puzzling test results in their home. Ending on a sweet note, we look ahead to what we believe will be a much better 2021, toasting our listeners with a tasty Carmel Cocoa Cider by Stem. Happy New Year to all!
Mike and Cam have an illuminating conversation with Dr. Ritu Verma from the University of Chicago Celiac Center. Dr. Verma shares her unique perspective on treating celiac disease not only as a doctor, but as a parent of two children with celiac disease. Dr. Verma talks about her holistic approach to treating patients because she knows firsthand that moving forward with a celiac disease diagnosis is not a one size fits all proposition. She also shares her thoughts on the U of C's recent Autoimmunity and Beyond symposium.
Mike and Cam sit down with Cinde Little, Health Educator, and passionate home cook who founded Everyday Gluten Free Gourmet. Cinde shares her personal story of how she became such a passionate advocate for supporting folks with celiac disease and helping people learn to love to cook gluten free. She also tells us some of her top cooking tips over the holidays and beyond including her "seasonal strategy" for rotating fresh ingredients when they are in season.
The life of a college athlete has may challenges. Add into that mix having celiac disease, and there can be many added speed bumps along the way. Laura Carpenter, a former college soccer player, explains what it was like to navigate the world of college athletics while being away from the safety net of her home and family for the first time. Laura also offers great tips to students and their families, athletes or not, on important factors to look for and think about when looking at schools.
Thanksgiving can present unique challenges to people with celiac disease or gluten intolerance. This year we have the added strain of dealing with COVID-19. Mike and Cam discuss what the changes will be for them this year as well as tips on how to stay safe during the holidays. They also share their insights on using the pandemic as an example for how careful we have to be in our lives avoiding gluten.
Lori Welstead, Registered Dietician and Nutritional Advisor at the University of Chicago Celiac Disease Center, joins Mike and Cam to share her own incredible story of her celiac diagnosis. Lori also talks about her approach working with newly diagnosed celiac patients. We also hear about the University of Chicago's upcoming Celiac Disease, Autoimmunity & Beyond virtual symposium that is coming up on Saturday, November 21st.
Mike and Cam are excited to be joined by Jeanne Reid and Laura Allred of the Gluten Intolerance Group (GIG). They share the big news with us that GIG is changing the Gluten Free Certification Organization (GFCO) seal, the GF in the circle that we have all come to know and trust over the years. We learn the details and thought process behind this decision and why it will benefit the celiac and gluten free community moving forward.