Mike and Cam sit down with Dr. Francisco Leon, renowned celiac researcher, immunologist, and founder of Provention Bio Inc. Dr. Leon is a leader in the research efforts to find treatments for celiac disease and shares with Mike and Cam some of the promising research efforts as well as the different forms that these treatments will take. Hear his compelling reasoning about why there isn't more celiac research in general as well as his insights about a possible celiac cure one day, when that might happen, and what it might look like.
Mike and Cam sit down for a fascinating conversation with the author of "Celiac Mom," Ann Campanella. Ann shares the challenges that she faced as a first time mother, suddenly thrust into learning the ins and outs of raising a child with celiac disease. These struggles were amplified by the fact that cooking did not come naturally to her. Ann illuminates Mike and Cam on some of her biggest takeaways from her celiac and gluten free journey.
In the exciting conclusion of Cam's 2 part Colorado snowboarding adventure, we try another delicious Holidaily Brewing offering, this time a fantastic stout! Cam also discusses some celiac related challenges that he faced on and around his trip. He also shares some "edge of your seat" moments that came at 12,000 feet as Cam battled back from some scary moments alone in the wilderness!
Cam and a close friend recently took a road trip to Colorado to hit the slopes and to sample some of the finest gluten free beers, courtesy of Holidaily Brewing. In part 1 Cam recounts his gluten free food packing strategy, we sample a few beers and hear about some of the challenges from both a food and weather perspective that comes with a road trip like this.
As Celiac Awareness Month winds down, Mike and Cam reflect on some of their specific takeaways. They also discuss ways they believe that we as a community can amplify and focus our efforts to make celiac awareness resonate on a larger level and create ways to provide more support for those in need.
Many Americans have been struggling financially, trying to figure out a way to get food on the table. It's even more challenging for people who need to be on a gluten free diet and can't find safe food at their local pantry. Mend Hunger is there to lend a hand with "Pantry Direct," a program shipping safe gluten free food boxes nationally! Mike and Cam sit down with the founders and talk about how they have pivoted, from supporting folks locally to expanding their reach on a much larger scale.
Claire Baker, Senior Communications Director of Beyond Celiac, joins Mike and Cam to talk about some great initiatives going on at Beyond Celiac, including "Raise Your Voice" and their work toward identifying celiac disease in underserved communities, helping to support and diagnose people who might otherwise be left without answers.
May is Celiac Awareness Month, so Mike and Cam kick it off once again with their annual "Celiac State of the Union" podcast. Hear Mike and Cam's personal list of 5 things that they think have improved in the arena of celiac awareness, and 5 things that they both think need some work. Most importantly, Mike and Cam hope that this year, celiac awareness month will lead to some important improvements to those of us living with celiac disease!
Mike and Cam are excited to sit down with Dr. Dale Lee, Director of the Celiac Disease Program at Seattle Children's and board member and parent, Anne Moon. Dr. Lee describes his refreshing and holistic approach to treating celiac disease at Seattle Children's. Anne shares her perspective of how involving the kids, their families and the medical staff has been a transformative experience for all. Dr. Lee is one of the forward thinking celiac physicians leading the charge in transforming the way that celiac patients are treated.
Maureen Basye, founder of the Celiac Cruise, is back to share some exciting updates and details about the Celiac Cruise in 2022. Maureen has also put together a smaller, more intimate European cruise, a truly unique adventure! Her desire is more than just a gluten free trip--her passion is to provide unique opportunities for our celiac community to connect with one another and be well informed all while having a blast!
Mike and Cam are excited to announce that they are both part of the phase 3 study of Larazotide Acetate. They share a few of the early details and their individual reasons for why they both felt it was important to take part. They also share some celiac related COVID and vaccine updates.
Mike and Cam welcome author, Michal Babay, to talk about her brand new children's book: "I'm a Gluten Sniffing Service Dog." Michal shares the fascinating and, at times harrowing, journey that led her daughter to getting their service dog, Chewy. We also learn about what inspired Michal to write the book and her hopes to educate and inspire others who are struggling with celiac and other food intolerance.
Every March folks put together a bracket for March Madness to try and pick the best college basketball team in the land. This year our friend Erin Smith, Gluten-Free Globetrotter, decided to have fun with another type of madness, the crazy terms people try and use to describe gluten free. She ran these terms into "brackets" through her Instagram page, and now Mike and Cam do their best to prognosticate what was voted the truly best "worst" term to describe gluten free. Find out if your least favorites make it to the championship!
Mike and Cam welcome returning guest, Disability Rights Attorney, Mary Vargas. Mary discusses an important and often overlooked topic; how the prison and jail systems handle inmates with celiac disease or other food intolerance/allergies. Mary is currently representing a man who, despite being diagnosed with celiac disease, was not given safe food while in jail. We go deep into this subject and talk about the need for the government to provide better support.
Mike and Cam are quizzed on all things Irish in honor of St. Patrick's Day on their first ever, "Stump Mike and Cam" podcast. In addition they try possibly the strangest spirit ever created, called Malort, and share the strange and entertaining story behind this quirky Chicago tradition that can be best described as motor oil with a twist of grapefruit. So grab a bottle of Malort, and test your Irish trivia!
Mike and Cam are excited to be joined by returning guest, Katie Jones. When we last talked to Katie (EP 71 and then EP 119) she was struggling mightily with her health. Katie has multiple autoimmune diseases including: brittle bone disease, MALS and POTS, in addition to celiac disease. Now in a much better place health wise, Katie is following her wanderlust, purchasing a van and setting out on a new life adventure with her gluten detection dog, Piper. She shares some of her plans and tips for those with celiac disease who want to go on similar adventures.
Mike and Cam are excited to be joined again by Marilyn Geller, CEO of the Celiac Disease Foundation. Marilyn joins us on the eve of the CDF's second Patient Education & Advocacy Summit. Learn all about this groundbreaking event and how you can be a part of it. Marilyn also shares more exciting news about other ways that the CDF is helping to advance legislation and research for celiac disease.
Mike and Cam, again joined by Mike's wife Ellen, dive into part 2 of Winter News and Notes, talking about a very promising phase three drug study. They also get to more of your incredible emails and the show ends with Mike giving Ellen a very "cheesy" challenge.
Mike's wife and the show's producer, Ellen, joins Mike and Cam to read some of the fantastic letters from our amazing listeners! Today, they discuss the shocking story about a wife and her husband's blood test mix up, plus an email looking for answers about when being on the gluten free diet isn't enough. Join us next week in Part 2 as we discuss more of your emails and share news of a very promising study.
The Celiac Project Podcast is excited to help with a big announcement! Mike and Cam are joined by Cutting Costs for Celiacs founder, Lexie Van Den Heuvel, and COO of GIG, Channon Quinn as they share that GIG will be taking Lexie's Wisconsin-based non-profit, which she began as a teenager, nationally. She and Channon explain the process of how GIG plans to support Lexie's mission to help folks with celiac who are struggling to get by on a much grander scale.
The "Big Game" is this weekend so we invited Sam and Brian to join this week's show! We get you ready by tasting a couple of ciders and beers and talk about our game day favorite foods. The discussion quickly turns to beer cheese, Welsh Rarebit, Nachos and something called Schmooey on Toast. It might sound cheesy, but is everything just better with cheese? Grab a cold one and decide for yourself as we get you ready for Sunday's "Big Game!"
The mind/gut connection is powerful and very real, especially with those who have celiac disease and other related GI conditions. Mike and Cam sit down with Dr. Alyse Bedell of the University of Chicago, who specializes in this phenomenon, to talk with us about her approach in treating patients who are seeking relief. Dr. Bedell shares her advice for our listeners who are struggling with some of these issues.
Last week, Mike and Cam had a blast reacting in real time to the survey questions from the latest edition of the Gluten Free Buyers Guide, without first knowing the results. There were some shockers! Tune in to Part 2, where these questions and results get even crazier!
The latest edition of the Gluten Free Buyers Guide published a fascinating survey of around 600 readers. Mike and Cam don't know the results, so they decide to go through the survey blindly and give their answers and prediction of how other celiacs answered. They had so much fun it became a two part show!
We celebrate our 5th year Anniversary of producing the podcast by each sharing our five takeaways over the duration of the show. We also celebrate the numerous incredible guests and thank our wonderful loyal listeners for continuing to listen, interact and support the work we do. Looking forward to a great 2021!