There are new studies looking at the correlation between celiac disease and IBS. Mike and Cam talk about their personal diagnosis of both conditions and talk about some of the similarities and differences that they see between the two. They also examine the fact that some people with IBS who are not diagnosed with celiac disease (but have a celiac gene), tend to do better on a gluten free diet. Hopefully studying celiac and IBS together will lead to more medical breakthroughs!
Long time friend of the show, Erin Smith, of Gluten Free Globetrotter fame, joins Mike and Cam to talk about her 40 years of living with celiac disease. Since Erin's initial diagnosis as a very young child, much has changed in the celiac and gluten free world. Erin shares some of her most profound takeaways living a life with celiac both from the perspective of a child and an adult. She also shares what got her started advocating for people with celiac disease and what keeps her going.
Mike and Cam sit down with Carla Carter, Director of Outreach and Programing at National Celiac Association (NCA). Carla shares her own personal celiac story as well as the origin story of NCA. We also learn about some of the exciting programs and initiatives that NCA is doing to support those with celiac disease. This includes online and in person support groups, their exciting "Feeding Gluten-Free" program to help those with food insecurity, and so much more!
In the exciting conclusion of our 2 part Summer News and Notes podcast, Mike and Cam share more fascinating letters from listeners. This includes questions about gluten detection dogs and oats, how we go about dining out, and some important work being done by the National Celiac Association. The guys also share their thoughts on a recent Italian study that might prove that celiac is more common than previously thought.
It's time again for Mike and Cam to dig into their mailbag and share some amazing letters, including a listener who gets help with a diagnosis of another autoimmune condition from tuning into a past podcast! Plus, hear about how the NIMA sensor saved the day involving a meal out that went wrong in so many ways. The boys also share some news including their thoughts on Men's Health Awareness Month.
Mike and Cam sit down with Dr. Francisco Leon, renowned celiac researcher, immunologist, and founder of Provention Bio Inc. Dr. Leon is a leader in the research efforts to find treatments for celiac disease and shares with Mike and Cam some of the promising research efforts as well as the different forms that these treatments will take. Hear his compelling reasoning about why there isn't more celiac research in general as well as his insights about a possible celiac cure one day, when that might happen, and what it might look like.
Mike and Cam sit down for a fascinating conversation with the author of "Celiac Mom," Ann Campanella. Ann shares the challenges that she faced as a first time mother, suddenly thrust into learning the ins and outs of raising a child with celiac disease. These struggles were amplified by the fact that cooking did not come naturally to her. Ann illuminates Mike and Cam on some of her biggest takeaways from her celiac and gluten free journey.
In the exciting conclusion of Cam's 2 part Colorado snowboarding adventure, we try another delicious Holidaily Brewing offering, this time a fantastic stout! Cam also discusses some celiac related challenges that he faced on and around his trip. He also shares some "edge of your seat" moments that came at 12,000 feet as Cam battled back from some scary moments alone in the wilderness!
Cam and a close friend recently took a road trip to Colorado to hit the slopes and to sample some of the finest gluten free beers, courtesy of Holidaily Brewing. In part 1 Cam recounts his gluten free food packing strategy, we sample a few beers and hear about some of the challenges from both a food and weather perspective that comes with a road trip like this.
As Celiac Awareness Month winds down, Mike and Cam reflect on some of their specific takeaways. They also discuss ways they believe that we as a community can amplify and focus our efforts to make celiac awareness resonate on a larger level and create ways to provide more support for those in need.
Many Americans have been struggling financially, trying to figure out a way to get food on the table. It's even more challenging for people who need to be on a gluten free diet and can't find safe food at their local pantry. Mend Hunger is there to lend a hand with "Pantry Direct," a program shipping safe gluten free food boxes nationally! Mike and Cam sit down with the founders and talk about how they have pivoted, from supporting folks locally to expanding their reach on a much larger scale.
Claire Baker, Senior Communications Director of Beyond Celiac, joins Mike and Cam to talk about some great initiatives going on at Beyond Celiac, including "Raise Your Voice" and their work toward identifying celiac disease in underserved communities, helping to support and diagnose people who might otherwise be left without answers.
May is Celiac Awareness Month, so Mike and Cam kick it off once again with their annual "Celiac State of the Union" podcast. Hear Mike and Cam's personal list of 5 things that they think have improved in the arena of celiac awareness, and 5 things that they both think need some work. Most importantly, Mike and Cam hope that this year, celiac awareness month will lead to some important improvements to those of us living with celiac disease!
Mike and Cam are excited to sit down with Dr. Dale Lee, Director of the Celiac Disease Program at Seattle Children's and board member and parent, Anne Moon. Dr. Lee describes his refreshing and holistic approach to treating celiac disease at Seattle Children's. Anne shares her perspective of how involving the kids, their families and the medical staff has been a transformative experience for all. Dr. Lee is one of the forward thinking celiac physicians leading the charge in transforming the way that celiac patients are treated.
Maureen Basye, founder of the Celiac Cruise, is back to share some exciting updates and details about the Celiac Cruise in 2022. Maureen has also put together a smaller, more intimate European cruise, a truly unique adventure! Her desire is more than just a gluten free trip--her passion is to provide unique opportunities for our celiac community to connect with one another and be well informed all while having a blast!
Mike and Cam are excited to announce that they are both part of the phase 3 study of Larazotide Acetate. They share a few of the early details and their individual reasons for why they both felt it was important to take part. They also share some celiac related COVID and vaccine updates.
Mike and Cam welcome author, Michal Babay, to talk about her brand new children's book: "I'm a Gluten Sniffing Service Dog." Michal shares the fascinating and, at times harrowing, journey that led her daughter to getting their service dog, Chewy. We also learn about what inspired Michal to write the book and her hopes to educate and inspire others who are struggling with celiac and other food intolerance.
Every March folks put together a bracket for March Madness to try and pick the best college basketball team in the land. This year our friend Erin Smith, Gluten-Free Globetrotter, decided to have fun with another type of madness, the crazy terms people try and use to describe gluten free. She ran these terms into "brackets" through her Instagram page, and now Mike and Cam do their best to prognosticate what was voted the truly best "worst" term to describe gluten free. Find out if your least favorites make it to the championship!
Mike and Cam welcome returning guest, Disability Rights Attorney, Mary Vargas. Mary discusses an important and often overlooked topic; how the prison and jail systems handle inmates with celiac disease or other food intolerance/allergies. Mary is currently representing a man who, despite being diagnosed with celiac disease, was not given safe food while in jail. We go deep into this subject and talk about the need for the government to provide better support.
Mike and Cam are quizzed on all things Irish in honor of St. Patrick's Day on their first ever, "Stump Mike and Cam" podcast. In addition they try possibly the strangest spirit ever created, called Malort, and share the strange and entertaining story behind this quirky Chicago tradition that can be best described as motor oil with a twist of grapefruit. So grab a bottle of Malort, and test your Irish trivia!
Mike and Cam are excited to be joined by returning guest, Katie Jones. When we last talked to Katie (EP 71 and then EP 119) she was struggling mightily with her health. Katie has multiple autoimmune diseases including: brittle bone disease, MALS and POTS, in addition to celiac disease. Now in a much better place health wise, Katie is following her wanderlust, purchasing a van and setting out on a new life adventure with her gluten detection dog, Piper. She shares some of her plans and tips for those with celiac disease who want to go on similar adventures.
Mike and Cam are excited to be joined again by Marilyn Geller, CEO of the Celiac Disease Foundation. Marilyn joins us on the eve of the CDF's second Patient Education & Advocacy Summit. Learn all about this groundbreaking event and how you can be a part of it. Marilyn also shares more exciting news about other ways that the CDF is helping to advance legislation and research for celiac disease.
Mike and Cam, again joined by Mike's wife Ellen, dive into part 2 of Winter News and Notes, talking about a very promising phase three drug study. They also get to more of your incredible emails and the show ends with Mike giving Ellen a very "cheesy" challenge.
Mike's wife and the show's producer, Ellen, joins Mike and Cam to read some of the fantastic letters from our amazing listeners! Today, they discuss the shocking story about a wife and her husband's blood test mix up, plus an email looking for answers about when being on the gluten free diet isn't enough. Join us next week in Part 2 as we discuss more of your emails and share news of a very promising study.
The Celiac Project Podcast is excited to help with a big announcement! Mike and Cam are joined by Cutting Costs for Celiacs founder, Lexie Van Den Heuvel, and COO of GIG, Channon Quinn as they share that GIG will be taking Lexie's Wisconsin-based non-profit, which she began as a teenager, nationally. She and Channon explain the process of how GIG plans to support Lexie's mission to help folks with celiac who are struggling to get by on a much grander scale.