Are there really people with celiac disease who are "more sensitive" than others? Mike shares his latest family get-together and how even after 14 years of being diagnosed with celiac disease, making a documentary, having a podcast and otherwise shouting from the rooftops, this condition can still be confusing--even for folks who think they understand the disease. Mike and Cam also talk about the level of awareness of Crohn's and Colitis as they relate to celiac disease, and why we celebrate Celiac Awareness Day, which was just last Wednesday.
It's been an eventful summer for Cam! In an exciting turn of events, he has recently discovered a new doctor who is helping him finally get to the bottom of some of his ongoing health issues. In addition to this, he just headed back to school after a long hiatus. Mike helps him unpack some of his takeaways from the latest exciting chapter of his life. On the subject of "back to school" they also share some distinctions between 504 plans, IEP's, and college accommodations.
Mike and Cam welcome Teona Khaindrava, founder and owner of Senza Gluten in New York City. Senza Gluten is truly one of the top gluten free restaurants in the world. Teona shares her passion for making sure that everyone who visits Senza Gluten has a memorable experience whether they need to eat gluten free or not. She also shares how the community has lifted her up during challenging times and what drives her to make sure that her customers at Senza Gluten eat the most delicious and safe gluten free Italian food possible!
Mike and Cam welcome Rep. Dean Phillips, member of the U.S. House of Representatives in Minnesota's 3rd DIstrict. Rep. Phillips introduced the Allergen Disclosure In Non-Food Articles (ADINA) Act into congress, named after a young girl by the same name who had a health scare at camp. If this bill becomes law, medications must adhere to the same labeling laws as food and beverages. Rep. Phillps shares how he learned about Adina's story, some of the challenges to getting this type of legislation passed, and his hopes that the president will soon be signing this bill into law.
In Summer News and Notes Part 2 we share recent letters, including updates on at-home celiac tests, how to deal with snarky comments about celiac disease and eating gluten free, and a restaurant chain wanting to improve their protocols in order to provide a safe dining experience for celiacs. We also talk about our celiac walk and more!
Mike and Cam share some great listener letters in their Summer News and Notes Part 1! There is a definite travel theme going on as Cam also recounts his recent road trip to Colorado which had some epic highs, but landed on a bit of a sour note. We also share a news story about a woman with celiac disease who has the worst plane trip of her life! Along the way we share lots of helpful tips and takeaways to help make sure that all of your summer travel is safe and gluten free.
Mike and Cam take a unique journey into the world of artificial intelligence from a celiac and gluten free perspective. Cam guides Mike down the "rabbit hole" to explore Chat GPT and to see how accurate its answers are to questions they submit about celiac and gluten free living. It gets personal when they ask Chat GPT to answer questions pertaining to them, including some hidden talents that Cam didn't even know he had! An entertaining and eye-opening episode!
It has been a rough few weeks for Mike! What he initially thought was the stomach flu turned out to be so much more! In hindsight, Mike unpacks part of the mystery as to what might have caused some of his recent digestive issues. He chronicles his health scare to Cam, and the stress of having to stay in the hospital. He also shares some near miss moments of getting gluten and tips on how you can stay safe at the hospital.
To conclude our special Celiac Awareness Month podcasts, Mike and Cam sit down with Dr. Marty Linseisen. Marty has the unique point of view of being a doctor whose celiac disease diagnosis directly coincided with finishing medical school. He shares his dramatic story of diagnosis, which included many missteps along the way. Marty's own celiac journey has made him passionate about raising awareness, busting myths, and helping advocate for the celiac community.
Mike and Cam welcome dentist and oral health educator, Melissa Ing. Melissa is passionate about raising awareness about celiac disease within the dental community. She is at the forefront of dental research and education, and talks to us about her efforts to bridge the gap between the medical and dental health professionals as it relates to celiac disease. Melissa shares some of her tips about how to make sure you are approaching your dental health in the best ways possible.
A native of India and currently studying abroad in the UK, celiac advocate, Annika Dhariwal, has been working to raise awareness about celiac disease in India. Diagnosed as a child, Annika created her own website, Gluten Free Jio, finding countless ways to help raise awareness and support the celiac community. Annika's story and message are truly inspiring--she is a great asset to the celiac and gluten free community!
Mike and Cam welcome Dr. Benjamin Lebwohl, gastroenterologist and researcher at the Celiac Disease Center at Columbia University. Dr. Lebwohl is one of the leading experts in the field! Mike and Cam have a far reaching conversation, including the latest in research and treatment of celiac disease, and how to increase awareness both within the medical community as well as the general population. Dr. Lebwohl also talks with us about what future treatment for celiac disease patients might look like, plus the changes and innovations in treatment that he is most looking forward to.
May is Celiac Awareness Month, and that means it's time for our 8th Annual, "Celiac State of the Union" Podcast! Mike and Cam check the rear view mirror on what's been happening in the celiac and gluten free community and share their top insights and takeaways. One thing is clear to the guys: while it can still be a struggle to live with celiac disease and gluten intolerance, there are many things to feel optimistic about moving forward. We hope everyone has a great Celiac Awareness Month!
Spring News and Notes is bursting with fascinating emails and news! Mike and Cam hear from an author with a diagnosis story that is "all in the family!" We also discuss some tips for cleaning gluten off of surfaces when traveling. Also, a friend of the podcast, who happens to be a scientist, checks in with some very ingenious tests that she has run, and you won't believe the results!
Spring News and Notes are here! Mike and Cam kick off part 1 with an update from Donna, who has six teenagers and is trying to assess which ones have gluten issues and if there is any other celiac disease within her family tree. The guys also discuss the disheartening story of a "gluten free" bakery that was actually filled with gluten. Plus, news of some fun events coming up in Celiac Awareness month and beyond.
Mike and Cam welcome author, Neva Ryan, to the podcast. Neva has just published her second children's book, Sabina's Celiac Story, about her daughter's celiac journey. It's also a family affair, as we hear about Neva's mother's diagnosis leading to both her and Sabina getting diagnosed. Hear about the wonderful story that Neva wrote to educate Sabina's class about celiac disease and how it eventually transformed into a powerful learning tool for families everywhere. Purchase a copy and learn more about the book at nevaryanbooks.com.
Grab your favorite gluten free beer and pizza and pull up a bar stool at the Celiac Project Pub! Mike and Cam are excited to welcome back Craig and Lyle to sample the best Chicago gluten free pizza from Chicago Pizza and try 5 incredibly unique beers from Otherwise Brewing in San Francisco. You will feel like you stumbled on the best gluten free bar and pub with a few old friends. Cheers!
Mike and Cam welcome Jessica Lebovits, registered dietician at the Celiac Disease Center at Columbia University, and fellow celiac, to the podcast. Jessica shares her recent research on the impact of celiac disease on dating. There are many eye opening takeaways, including the surprising number of people who intentionally ingest gluten on a date. Jessica also shares some of her reasons for conducting this type of research, insights that she took away from it, and her desire to look even deeper into this subject.
Finding time for self-care is important, and it's especially true when you have a condition like celiac disease or gluten intolerance. Mike and Cam share some of their own self-care tips and talk about some of the stratagies they employ on a daily basis to rejuvenate and recharge!
Mike and Cam are excited to sit down with Orly Gottesman, founder and owner of Modern Bread and Bagel. Orly shares her personal story about her husband's celiac diagnosis, leading her on an international culinary journey of discovery. Orly’s fascination with finding a way to replicate her gluten filled favorites ultimately led her to creating an amazing line of gluten free flours, gluten free breads, donuts, and bagels that are so amazing they are indistinguishable from the gluten filled versions.
During a recent get together, Mike has a sinking feeling that he got glutened. Thanks to the help of his NIMA Partners sensor, that fear is confirmed. He shares some of his takeways from this strange situation and the guys discuss other tools that might be helpful after a suspected contamination. Mike also shares some tooth troubles and his detective work to see if having celiac disease contributed to the problem.
Mike and Cam welcome Meghan Donnelly, registered dietician and Senior Manager of Nutrition Services at ScharUS. Meghan talks about the unique approach that Schar takes by having dieticians in key roles at the company around the world. They also discuss some of the innovative ways that Schar makes their products, including growing their own grains as well as the important work that they are doing to help to reduce food insecurity in the gluten free community.
Mike's daughter and returning guest, Jessica, joins her Dad and Cam to talk about high school drama. But not the typical roller coaster, the celiac kind! Jessica shares her insights and how she stays positive despite some of the challenges she's encountered lately, including a teacher who made her happy she has a 504 Plan, tumbling into a misstep at gymnastics practice, and a big decision to make on whether to participate in a class trip.
Part 2 of Winter News and Notes is a jam packed episode filled with great stories and advice! Mike and Cam comment on an incredible email from a newly diagnosed listener with a house full of teenagers and a whole lot of unanswered questions. They also share lists of some of the top gluten free ballparks and some of their own tips on how you can be prepared and stay safe when heading out to a sporting event. You will also find out about the intriguing saga of KC Potato Girl and so much more!
We've got surprising updates plus great listener letters from our Mailbag. In part 1 of Winter News and Notes, Mike and Cam share the intriguing story of a woman who was diagnosed in High School, and still struggled as a graduate student until she was finally able to find excellent medical support in her area. They also give an update on some of the demographic breakdown of celiac disease and much more! Stay tuned for next week's show where the guys turn to thoughts of Spring, talking about safe gluten free options at ballparks and their advice on what to do before heading out to the old ballgame!