Mike and Cam are pleased to be joined by Becca Hawkins, founder of the brand new non-profit, Portland Celiac, whose mission is to build a more inclusive community for those affected by celiac disease and gluten intolerance in the Portland metro area. Becca talks about what inspired her to start Portland Celiac and some of the biggest hurdles that she has faced. She also discusses how local groups like hers can serve our community and ultimately make systemic changes to improve the lives of people with celiac and gluten sensitivities.
This week we look at what's been happening in the world of gluten free labeling. It still feels like two steps forward and two steps back, but hopefully things are starting to change for the better. Also, Mike came across a person with a huge YouTube following who could use a little help understanding what organic and gluten free mean, and that there is actually a difference between the two.
Join Mike and Cam as they talk to Beyond Celiac's Chief Scientific Officer, Dr. Marie Robert and get a sneak peak at Beyond Celiac's upcoming 2nd Annual Research Symposium. They are doing exciting work to help bridge the patient/doctor gap and sponsoring research to find new treatments and therapies for celiac disease.
Mike and Cam weigh in on the latest information coming out about the Nima Sensor. They also discuss the reality that many gluten free replacements for foods can be quite unhealthy, while there is a lot of confusing information that is actually trying to sell gluten free foods as a "healthier alternative."
Mike and Cam discuss Susan Cohen's important new article in Gluten Free Living Magazine called "Extra-intestinal Symptoms of Celiac Disease in Children," highlighting research that a larger percentage of children are exhibiting non-intestinal celiac symptoms than previously thought. Are "atypical" symptoms more the norm, but because many people do not exhibit classic symptoms, doctors are just not testing for celiac disease? We discuss what it would take to change the conversation in the public's perception and within the medical community.
Mike took a family vacation and there were some gluten free highs and lows. The boys share some of their traveling tips when hitting the road. We also hear a quick update on Cam's gluten detection training with his dog Lacy.
Mike and Cam are excited to be joined, all the way from Vietnam, by Carrie Veatch founder of "For Gluten Sake." Carrie is a celiac who has traveled far and wide and her passion and mission is helping the celiac and gluten free world to navigate the sometimes murky waters while traveling abroad. Carrie's latest project is compiling a comprehensive list of 100% gluten free restaurants around the world. You will not believe how many she has already added!
It's back to school time and Mike and Cam are happy to be joined by Debbie Simpson. Debbie is an educator who, after her celiac diagnosis, became passionate about helping the education world understand the realities of celiac disease in the classroom. She wrote 2 versions of her book, Adam and Hailey's Gluten Free Surprise, inspiring us to discuss some of the top strategies to keep your child healthy and happy in school.
Part 2: We talk about the frustration and issues that arise when only one parent supports a child on a gluten free diet. Also, a listener's scary symptoms and finally finding the surprising cause of her gluten contamination. Thanks again for all the great contributions to the podcast. Please keep your comments coming!
We love our listeners! You, our devoted fans, have written us some amazing emails and we are sharing some of these today. Part 1: One listener shares how owning chickens can have adverse effects on your celiac disease (and possibly your sanity). Please keep your amazing emails and comments coming! Part 2 next week.
Mike and Cam sit down to talk to Baltimore Gluten Free founder and celiac advocate, Andrea Tucker. We hear Andrea's story and have a discussion about advocating for ourselves and others. Also, with school just around the corner we get into our personal thoughts and experiences with school 504 plans. The Celiac Project and Baltimore Gluten Free want you to have the best information available, so Baltimore Gluten Free has put together a special Celiac Resource sheet for our listeners.
Inspired by an article on DailyMail.com entitled; "'I could have died': Coeliac wonan, 27, is rushed to hospital after a restaurant wrongly told her that her chicken and waffles were gluten-free." Mike and Cam look at some spotty and bad gluten free information on the web. We also talk about some tips of how we handle challenging situations when eating out.
We are pleased to be joined by Christin Osborne, from Portland, Oregon. Christin tells a harrowing tale about her unbelievable health struggles before finally getting some answers, including her sons' diagnoses. We also talk about Portland as a gluten free mecca, with many dedicated gluten free bakeries and restaurants.
Inspired by Susan Cohen's great article in Gluten-Free Living featuring Mike's nephew, Sam Frolichstein-Appel, Mike and Cam discuss silent celiac disease in great detail. The article, that also features an interview with Dr. Alessio Fasano sheds many insightful and fascinating details about some of the unique challenges of having and diagnosing asymptomatic celiac.
Dr. Marie Robert, a top celiac doctor, pathologist and researcher is now Beyond Celiac's CSO. She talks with us about the exciting plans that she has in her new position. Dr. Robert also tells us about some of the changes and innovations that she has seen in the celiac world and some exciting new treatments and therapies that are in the pipeline.
It's summer time and that means it's grilling season! Mike and Cam discuss their tips to stay gluten free at cookouts and barbecues. We also share some of our favorite foods to toss on the grill and some that we are looking forward to trying soon.
Though it might not get discussed very often, airborne gluten can cause a reaction. Mike and Cam talk about two farmers whose celiac symptoms would not subside due to inhaling gluten while feeding their livestock. We also look at some surprising sources of airborne gluten and some tips on protecting yourself when gluten is in the air.
It's been a while, so this week we dig through our mailbag. Special thanks his week to Andrea Tucker, of Baltimore Gluten free, who put together and submitted her list to us: "5 Facts a Celiac Doctor Wants you to know about Celiac Disease." We love our listeners and you are the fuel that keeps us going!
Mike and Cam want to thank Burning Brothers Beer company in Minnesota for providing beer to try on today's podcast. Friend of the show, Laura Eash, brought this gluten free micro brew to us at a recent Expo. We give our thoughts on their pale ales, and some of our opinions on beer in general. Cam also shares a quick update on some of the positive work that his dog, Lacy, has been doing in detecting some surprising sources of hidden gluten in his home.
Mike recently returned from an amazing trip to San Fransisco. He shares navigating his gluten free dining experiences, along with some of his advice for visiting SF and some great travel tips in general. Most importantly, he learned - don't ever call the Cable Cars "Trolleys!"
Author and fellow Celiac, Keith Van Sickle, join Mike and Cam for a second time, this time with Keith's wife, Val. They share with us some of the main differences living gluten free in France versus the U.S. They also share some of their top tips navigating restaurants and social situations, which in France, almost always involve food. You'll feel like you've just visited Provence after this captivating discussion!
We look at 2 seemingly conflicting recent studies. A recent study conducted by the FDA says that food labeled gluten free almost always adheres to the gluten free standards in the U.S. The other study from The American Journal of Clinical Nutrition showed that most celiacs are consuming a much higher level of gluten than is safe. So what gives? We speculate on some of the reasons why we think this is happening.
Happy Celiac Awareness Month to everyone! Mike and Cam take a look at the current state of celiac awareness in the community and abroad. In addition, they talk about their personal approaches to spreading awareness in their own lives.
Just one year ago, Mike and Cam met fellow celiac advocate, Katie Jones, and heard her harrowing story about living with brittle bone disease and how her dog, Piper, helped her heal from that. Katie updates us on her latest challenges of being diagnosed with MALS and POTS. Find out how she's turned her latest road blocks into ways to inspire and support others!
Mike and Cam dive into Casey the College Celiac's post, 13 "Harmless" Comments that Actually Hurt People with Celiac Disease. What follows is a spirited and entertaining discussion of these sometimes outrageous comments.