In this Winter News & Notes episode of The Celiac Project Podcast, Mike and Cam share powerful listener updates and real life celiac journeys. From insurance battles and refractory celiac disease to mental health, OCD, and navigating college gluten free, this episode highlights both the challenges and the progress happening in the community. They also discuss advocacy efforts around FDA labeling and helpful resources for checking whether medications are gluten free.
Mike and Cam are joined by Anne Moon and Dr. Annemarie Rompca from the Seattle Children’s Celiac Disease Program, to discuss how comprehensive, community-focused care can help kids and families thrive after a celiac diagnosis. They cover early challenges, mental health support, youth mentorship, community outreach with restaurants, and the future of celiac research — all through the lens of both medical expertise and lived experience.
🎥 You can also watch this episode on YouTube at youtube.com/@celiacproject
https://youtu.be/8JFEw9x-l4g